About Us

About the Cystic Fibrosis Foundation

Proceeds from the Swamp Pop Music Festival benefit the Cystic Fibrosis Foundation. The Foundation’s mission is to find a cure for cystic fibrosis and to improve the quality of life for people living with the disease. We accomplish this by funding life-saving research and working to provide access to quality care and effective therapies for people with CF.

Cystic fibrosis (CF) is a life-threatening genetic disease that occurs when a child inherits two copies of the defective CF gene – one from each parent. More than 10 million Americans (one in 31 people) are symptomless carriers of the gene. Each time two carriers conceive, there is a 25 percent chance their child will have CF.

The defective CF gene causes the body to produce an abnormally thick, sticky mucus that clogs the airways and leads to life-threatening lung infections. The thick CF mucus also obstructs the pancreas, preventing enzymes from reaching the intestines to digest food.

There are approximately 30,000 children and adults in the United States who have CF.

When the Foundation was established in 1955, children with CF rarely lived long enough to attend elementary school. Due in large part to the Foundation’s aggressive investments in innovative research and comprehensive care, many people with the disease can now expect to live into their 30s, 40s and beyond.

The CF Foundation funds and accredits a national care center network — including Tulane University Medical Center in New Orleans and LSU Medical Center in Shreveport — that has been recognized by the National Institutes of Health as a model of care for a chronic disease.

The Cystic Fibrosis Foundation is one of the most efficient organizations of its kind and is an accredited charity of the Better Business Bureau’s Wise Giving Alliance.

The only thing that stands in the way of finding a cure is the need for additional funds to support CF research.

You can help us add tomorrows every day for CF patients. Click here to DONATE to the Swamp Pop Music Festival and CF Foundation.

Click here to learn more about the CF Foundation.

Sponsors and Thank You’s

2015 Festival Sponsors:

Title Sponsor

Fais Do Do Sponsor

Volunteer T-Shirt Sponsor

Lagniappe Sponsor

Friend of the Festival Sponsor

Supporting Donors
To discuss sponsorship and donation opportunities, contact our office at (225) 769-9994 or e-mail at baton-rouge@cff.org

Brad Brewster, Court Batson, and Thomas Peri of Bent Media and Mystic Knights of Mau Mau generously donated their expertise and many, many hours of time to the CF Foundation to develop our festival website.

Illustrator Mark Andresen developed “Kenny,” our musical alligator logo as a donation to the CF Foundation.

Shane K. Bernard, Historian of McIlhenny Co. and author of “Swamp Pop: Cajun and Creole Rhythm & Blues” and “The Cajuns: Americanization of a People” both available from University Press of Mississippi, advised festival staff.

Todd Long generously donates his time and skill to emcee our Jambalaya Cook-off.

Donate to the Swamp Pop Music Festival

To donate to the Swamp Pop Music Festival and the CF Foundation, mail your tax-deductible check made out to the Cystic Fibrosis Foundation (please write “SPOP” on the Memo line) to:

Cystic Fibrosis Foundation – Baton Rouge Office
10532 S. Glenstone Suite C
Baton Rouge, LA 70810

To discuss your donation or other ways you’d like to help or to donate using a credit card, contact us at:
phone: (225) 769-9994
toll-free: (877) 753-9990
e-mail: baton-rouge@cff.org

To donate your car, call 1-800-456-5517 or link to the
CF Foundation Vehicle Donation website.

THANK YOU for your generosity. We come closer to a cure every day and with your help, we can make CF stand for “Cure Found.”

Sarah’s Story

Sarah Eastridge, a precious young girl who has CF, was the inspiration for the founding of the festival.

Sarah was diagnosed with CF as a baby. Since then she has been hospitalized numerous times, and has had 9 surgeries, and numerous tests, scans, and procedures that required anesthesia. Sarah’s IV treatments have become very extensive because she has developed another problem with her lungs. Although Sarah has had many difficulties with digestion and being able to gain and maintain her weight, she is as healthy as can be expected. It requires a lot of extra care to keep Sarah this way. She is fed through a feeding tube and pump to help her get the nutrients she needs because she doesn’t eat by mouth. She also takes the multi-vitamin Vitamax, Zantac, Zyrtec, Biaxin, Culturelle and 1 digestive enzyme Creon 20 during the day and 3 when she is connected to her feeding pump.

Twice a day she has to have breathing treatments and vest therapy. Sarah finally realizes that the treatments are what enable her to breath easier. The vest therapy is a new way of getting the mucus to dislodge in her lungs instead of the pounding her parents use to have to do. She does a breathing treatment daily called Pulmozyme. Sarah also has to do TOBI breathing treatments twice a day every other month.

Several times a month Sarah goes to Tulane Medical Center in New Orleans to meet with her doctors. Sarah has severe stomach problems. She also has lung problems that are progressively getting worse due to her new diagnosis of Atypical Mycobacterium Disease. Sarah is somewhat underweight, but her appearance can be misleading. Sarah has had several surgeries hoping that they would help her stomach problems, but unfortunately they haven’t corrected the problems yet.

She is a very happy-go-lucky child who loves playing with her relatives and friends. Riding 4-wheelers with her daddy and brother, and playing on the computer with her mommy are also high on her love-to-do list. Sarah’s favorite outing is going to her weekly Dance Class, even though she doesn’t get to go every week.

With continued progress through research, love, and care of her family, friends, doctors, and those who support the CF Foundation, Sarah Eastridge may indeed live to see a cure. Please keep Sarah and other precious children with CF, like Kayde and Libby (also pictured), in your daily prayers. With your help, we can make CF stand for “Cure Found.”

Click here to DONATE to the Swamp Pop Music Festival and CF Foundation and help Sarah, Kayde, Libby, and other individuals with CF!